7 November 2019 | Istanbul, Turkey

Agenda

Plan Your Attendance
Thursday, 7 November 2019 (Day 1 of 1)

Thursday
7 Nov 2019
08:45 – 09:15
Registration
Registration
09:15 – 09:30
Opening Remarks
  • Sabancı University
  • TÜBİTAK - International Cooperations Directorate 
    • Director- Mr. Mete Karaca
  • SUNUM 
Information Day
09:30 – 11:00
Rare Diseases Research Activities in Turkey and Europe
  • Dr. Halil Dündar – Gazi University Medical School 
    • Rare Diseases Research in Turkey
  • Prof. Mark Turner - University of Liverpool  
    • Rare Diseases Research in Europe /Clinical Trials Perspective
  • Prof. Luca Sangiorgi, Medical Genetic Department, Rizzoli Orthopaedic Institute, Italy 
    • European Reference Networks and Research Infrastructures in Rare Diseases
Information Day
11:00 – 11:30
Coffee Break
Information Day
11:30 – 12:30
EJP-RD - JTC2020 Joint Transnational Call on Rare Diseases
  • Dr. Jale Şahin - TUBITAK – EJP-RD National Coordinator    
    • EJP-RD programme- How to write a good JTC proposal for the JTC2020 call?
  • Ms. Gulcin Gumus - EURORDIS - Patient Advocacy 
    • Where is POAs in EJP-RD Programme and Their Integration to Research Projects?
Information Day
12:30 – 13:30
Lunch
Information Day
13:30 – 14:00
Success Story – 12 years of international collaborations in E-Rare
  • Prof. Dr. Nurten Akarsu - CRANIRARE - CRANIRARE -2 Experiences (Hacettepe University Medical School )
Information Day
14:00 – 14:30
Flash Presentations
Information Day
14:30 – 16:30
Networking - B2B Meetings
The event agenda's time zone is +03.