7 November 2019 | Istanbul, Turkey

Agenda

Plan Your Attendance
Thursday, 7 November 2019 (Day 1 of 1)

Thursday
7 Nov 2019
08:45 – 09:15
Registration
Registration
09:15 – 09:30
Opening Remarks
  • Sabancı University
    • Prof. Dr. Mehmet Yıldız, Vice President for Research and Development
  • TÜBİTAK 
    • Dr. Orkun Hasekioğlu, Advisor to the President of TÜBİTAK
  • SUNUM 
    • Prof. Dr. Fazilet Vardar Sukan, Director 
Information Day
09:30 – 11:00
Rare Diseases Research Activities in Turkey and Europe
  • Dr. Jale Şahin - TUBITAK – EJP-RD National Coordinator 
    • Rare Diseases Research in Turkey
  • Prof. Mark Turner - University of Liverpool  
    • Rare Diseases Research in Europe /Clinical Trials Perspective
  • Prof. Luca Sangiorgi, Medical Genetic Department, Rizzoli Orthopaedic Institute, Italy 
    • European Reference Networks and Research Infrastructures in Rare Diseases
Information Day
11:00 – 11:30
Coffee Break
Information Day
11:30 – 12:30
EJP-RD - JTC2020 Joint Transnational Call on Rare Diseases
  • Dr. Jale Şahin - TUBITAK – EJP-RD National Coordinator    
    • EJP-RD programme- How to write a good JTC proposal for the JTC2020 call?
  • Ms. Gulcin Gumus - EURORDIS - Patient Advocacy 
    • Where is POAs in EJP-RD Programme and Their Integration to Research Projects?
Information Day
12:30 – 13:30
Lunch
Information Day
13:30 – 14:00
Success Story – 12 years of international collaborations in E-Rare
  • Prof. Dr. Nurten Akarsu - CRANIRARE - CRANIRARE -2 Experiences (Hacettepe University Medical School )
Information Day
14:00 – 15:00
Flash Presentations

Annalisa Landi, Gianni Benzi Pharmacological Research Foundation

Ogün Adebali, Sabancı University

Huu Phuc Nguyen, Ruhr University Bochum

Can Holyavkin, Gen Era Diagnostics

Alexander Kastaniotis, University of Oulu

Emilio Carbone, University of Torino

Antonino Puglisi, Istanbul Technical University

Ertuğrul Çagrı Bölek, Hacettepe University

Fatih Kocabaş, Yeditepe University

Mustafa Yavuz Köker, Erciyes University

Information Day
15:00 – 16:30
Networking - B2B Meetings
The event agenda's time zone is +03.